Spex Seating Stories

Nick is a very bright and cheerful young man with a fantastic sense of humor. Nick has Cerebral Palsy Spastic Quadriplegia. He lives on a Dairy Farm and loves the outdoors and getting out with this father among the animals.

Nick has hip flexion contractures of 40 degrees on his left leg, 60 degrees on his right leg and with his extensive tone. He needs very strong seating hardware, and good positioning and support to control his posture and complexity of his condition.

Last week Nick needed a complete review of his seating system. This is where we stepped in. Nick lives almost 4 hours from us, but we invited the family to come to our clinic where our technicians could complete everything for him.

Here is a list of what Spex prescribed for Nick:

Meet Teimana, a 7 year old boy with Mitochondrial Disease and Leigh Syndrome.

Teimana was 2 months old when he was diagnosed with the rare condition and was given 1-2 years to live. But he is 7 now and ‘doing pretty great’.

Mitochondrial disease (mito) is a debilitating and potentially fatal disease that reduces the ability of the mitochondria to produce this energy. When the mitochondria are not working properly, cells begin to die until eventually whole organ systems fail and the patient’s life itself is compromised.

Source: https://www.mito.org.au/mitochondrial-disease/

Just a typical day with Teimana… he likes to wake up between the hours of 4am and 5am, get us awake with a good elbow and a bit of a slap on the head ‘well get up, let’s go, let’s do something’…

The bright colours featured in these pictures make us feel so happy! And we love how they light up this young lady's wheelchair:  

  

Lucy (not her real name) is well known to our service and we have been struggling for several years to get her seated adequately in her wheelchair. She was referred to me again after increasing concerns regarding difficulty positioning and poor oral intake.

Her previous seating has been custom foam’n’place moulded insert which we regularly had to re-do or carve out to meet her progressing postural changes. I decided to try the Spex backrest on this intervention but was unsure if it could accommodate her severe deformity.

I was very pleased with the result and combined with a custom cut foam cushion Lucy is well supported, has increased her oral intake and is interacting more with her environment.

Hannah a senior New Zealand occupational therapist says the SPEX seating range is “unsurpassed” when it comes to providing postural support for her physically challenged and disabled wheelchair-bound clients.

“The range of modifications and adjustments that are available make the products so versatile, particularly when it comes to providing lateral support and a contoured back.  I haven’t found the same degree of flexibility with any other standard product range.”

Hannah has worked with both adult and child clients and started using the SPEX product range, developed by Medifab, around 2008. “I loved using the products straight away and have been a fan ever since. I am now really familiar with the products which allow me to tailor solutions to my clients’ needs and capabilities and adjust the solutions as we go along to maintain effective seating and positioning.”

Melbourne-based neurological physiotherapist Carlee Holmes enjoys the quality and flexibility of the SPEX wheelchair seating range from Medifab.

“The products provide the flexibility to make adjustments on-the-spot, rather than having to slice foam or organize custom moulding. For complex seating, the SPEX products provide a great first base.”

Carlee works in the public health system, and also in private practice at Synapse Physio (www.synapsephysio.com.au), where she treats young adults and adults with disabilities related to a range of neurological conditions including stroke, multiple sclerosis and cerebral palsy.